BWCA Lasting effects of Covid Boundary Waters COVID-19 Information and Discussion
Chat Rooms (0 Chatting)  |  Search  |   Login/Join
* For the benefit of the community, commercial posting is not allowed.
Boundary Waters Quetico Forum
   COVID-19 Information and Discussion
      Lasting effects of Covid     
 Forum Sponsor

Author

Text

Mocha
distinguished member(7575)distinguished memberdistinguished memberdistinguished memberdistinguished memberpower member
 
07/05/2021 07:00PM  
So, I had covid in March. The main part of the disease lasted two weeks. I didn't feel ready to return to work but did it anyway.

One major thing that happened was I was unable to read a book. Problem having the words make sense as a sentence. I know the words though.

So, I am still unable to read a book without re-reading sentences an paragraphs. Retention seems to be an issue.
I also see it when trying to read trip reports. I can grasp short comments in threads.

The eye doc says my vision is unchanged despite me describing blurriness and patchy shadows passing over my vision. She gave me eye drops.. she says my reading problem is not vision related.

I haven't been to my regular doctor since it's difficult to get appointment when I can be not working.

I have had both Pfizer shots both resulting in making me feel like I had covid all over again.

It's depressing, I love reading.
 
      Print Top Bottom Previous Next
07/05/2021 07:28PM  
I am really sorry to hear about your continued symptoms. Although not present in the majority of cases it is all too common to have symptoms linger from COVID. it is just too new of a disease to know how long this symptom will last… getting good sleep, hydration, Speech therapy (they do cognitive therapy and compensation) and consistent graded gradual increase in cardiovascular exercise seem to help resolve it sooner.

It seems to be affecting your life, I’d see your MD. they probably won’t do much at first, but it starts the process…visit/advice + time…then if there are no results move to other steps.

Most of the time this resolves with time, but there are several studies ongoing on treatment therapies to help it get better faster or resolve tougher/more stubborn cases.

Some info.

COVID long term Sx’s

Brain fog—covoid

Mayo Clinic video: at about 8 minutes they mention some treatments
 
missmolly
distinguished member(7404)distinguished memberdistinguished memberdistinguished memberdistinguished memberpower member
 
07/06/2021 09:10AM  
T, your reply is a gift to Mocha, as it's concise, on point, and offers possible fixes.

My sister had COVID and she might be a long hauler too. Her ease of breathing now comes and goes. I think I read that a quarter of all those who had COVID had long haul symptoms.
 
07/06/2021 06:29PM  
missmolly: "T, your reply is a gift to Mocha, as it's concise, on point, and offers possible fixes.


My sister had COVID and she might be a long hauler too. Her ease of breathing now comes and goes. I think I read that a quarter of all those who had COVID had long haul symptoms."


I can’t imagine how frustrating it would be to have a problem and no one can give yiu an exact answer…unfortunately that’s where we are at.

25% is a good estimate of long haulers, to be honest no one knows for sure. Not everyone seeks help or reports symptoms. In the Mayo Clinic video they estimate around 10% for cognitive issues if I remember correctly.

T
 
andym
distinguished member(5166)distinguished memberdistinguished memberdistinguished memberdistinguished memberpower member
 
07/06/2021 09:43PM  
I'm sorry that you are struggling and hope it improves with time and/or medical help.
 
07/24/2021 11:00PM  
Mocha-take Timikins advice-go see your Medical doctor or preferably one whom is up on the Covid disease. Many times were all guilty at it-we will say just one more day to see if I will get better. Get in there.
 
07/26/2021 01:48PM  
Mocha: "So, I had covid in March. The main part of the disease lasted two weeks. I didn't feel ready to return to work but did it anyway.

One major thing that happened was I was unable to read a book. Problem having the words make sense as a sentence. I know the words though.

So, I am still unable to read a book without re-reading sentences an paragraphs. Retention seems to be an issue.
I also see it when trying to read trip reports. I can grasp short comments in threads.

The eye doc says my vision is unchanged despite me describing blurriness and patchy shadows passing over my vision. She gave me eye drops.. she says my reading problem is not vision related.

I haven't been to my regular doctor since it's difficult to get appointment when I can be not working.

I have had both Pfizer shots both resulting in making me feel like I had covid all over again.


It's depressing, I love reading."


The one eye opened worked. One closed.

Mocha this I am sure unrelated but I will tell you my experience with a non covid,but eye problems that I had which I got dizzy from, could not read more than a sentence,I could see the words but did't correlate in the mind. I also had catarac problem.

Why I could not read newpapers or books for more than a few seconds-still not positive why. But here it goes. One eye without glasses was like 200 diopters difference than the other,even when corrected with glasses your eyes are like a camera lens and you should end up with one picture. MY mind had a problem doing that. now after catarac surgery the dizzyness went away,reading problem and bright light problem went away.

Make it short-I noticed if I read newspapers with one eye closed I had no probelm reading. Opened both eyes and tried reading I could read about 8 words than it got tough. Could see the words but mind didn't want to digest them. For some reason my mind to the eye lens worked fine using one eye but not two. The digital on computer wasn't quite so bad.


Now I had different things going on and than corrected. But the one eye closed I could read very well, maybe a long shot might work for you.which shows your eyes are not working together. Note: my comments are from a amatuers point of view. Just try it it only takes a second.

I get more time tonight I could elaborate more.
 
Mocha
distinguished member(7575)distinguished memberdistinguished memberdistinguished memberdistinguished memberpower member
 
08/14/2021 08:15AM  
Well. Finally got in to see my doctor. She spent as out an hour doing various cognitive tests, which I passed. She was also doing some tests to check for signs of early dementia. Her feeling is that it's a wait and see game, that no one really understands or knows all the long term effects of Covid.

In the meantime I've been doing my own therapy of crossword puzzles, reading easier stories with short words and short sentences, lots of pictures.

She said if I wanted to see the clinic psychiatrist and OT person she would set that up, but I decided to try some of this other stuff instead. Lots cheaper.

As to why my hair is falling out in gobs, she says it's just the stress my body has gone through having bad covid. But she took some blood to check the thyroid and hemoglobin.

Also, I have "over use arthritis". Nice way if saying age related arthritis :).

Satisfied with the visit, overall, and it has eased my mind somewhat.

Now, unvaccinated coworkers are getting covid resulting in a mask mandate again. That really turns my crank. I didn't realize this area I'm working in for a few months has only 1 vaccinated person!!
They all have young kids, too yet. Well, I just can't believe they don't have more concern about the welfare of their kids should the adult get really sick or worse ....I get tired of listening to them complain about masks and govt telling them what to do. Ugh
 
08/14/2021 06:12PM  
Take care and keep trying to get a answer from the medical field on your obvious health problems.

Take care.
 
straighthairedcurly
distinguished member(1173)distinguished memberdistinguished memberdistinguished memberdistinguished member
 
08/14/2021 08:48PM  
Frustrating. Keep taking care of yourself.
 
08/14/2021 09:57PM  
Very frustrating…
 
andym
distinguished member(5166)distinguished memberdistinguished memberdistinguished memberdistinguished memberpower member
 
08/14/2021 10:33PM  
I'm glad the visit made you feel a bit better. And I think that crossword puzzle therapy is a fine and valid approach. It's always good to exercise the brain. I hope things improve over time. And I hope more of your coworkers see the light and get vaccinated.
 
yellowcanoe
distinguished member(4989)distinguished memberdistinguished memberdistinguished memberdistinguished memberpower member
 
08/15/2021 02:44PM  
It is frustrating when all the Govt is doing is following the advice of doctors.

And I hope they "see the light" before they see the light of a laryngoscope. And I learned today in some areas there is a waiting list for ECMO. People that can't get that and need it are doomed. And their kids???

Its a shame people can't see the long view.
 
Canoearoo
distinguished member(2513)distinguished memberdistinguished memberdistinguished memberdistinguished member
 
08/16/2021 11:27AM  
My mom lost a lot of hair because of covid. She went to a Dermatologists and he said it is a very common side effect of covid.
 
BV
member (25)member
 
08/16/2021 08:59PM  
Mocha, sorry for your "long haul" side affects. You might check out FLCCC.net.
The I-Recover Protocol might give you some relief.
 
Papinator
distinguished member (395)distinguished memberdistinguished memberdistinguished member
 
08/19/2021 11:32AM  
yellowcanoe: "It is frustrating when all the Govt is doing is following the advice of doctors.


And I hope they "see the light" before they see the light of a laryngoscope. And I learned today in some areas there is a waiting list for ECMO. People that can't get that and need it are doomed. And their kids???


Its a shame people can't see the long view."


Very true. At the hospital I work at, we have several ECMOs going, one is from over 600 miles away due to lack of bed availability, and we've had requests from hospitals for other patients from several states away... unfortunately, we are at capacity.
 
billconner
distinguished member(8077)distinguished memberdistinguished memberdistinguished memberdistinguished memberpower member
 
09/03/2021 08:22AM  
An interesting but long article on long Covid.
LONG-HAULERS ARE FIGHTING FOR THEIR FUTURE
 
09/07/2021 10:04AM  
Wow Mocha... I’ve been in the ER twice, once by ambulance as I went down in the middle of EMR training. We were doing Scenarios And as it came to my turn I slumped. One of our responders in a nurse practitioner and was watching me. Everyone else except the instructor thought I was doing a good job acting my part. She knew that wasn’t my scenario. My blood pressure was through the roof (never happens) and I was there but couldn’t talk. I got checked out and after three days in the hospital they found nothing. But the doctor mentioned post covid issues. I can’t even walk to my mailbox and I’m down for the count now. I was at the University clinic Thursday with the final thought being post covid issues. I can’t work and can barely take care of my needs here. I have to depend on people helping me (like GrandmaL coming up and driving me to the cities and providing a place to stay... what a friend!) my sister shopped for me while she was up this weekend... now that’s scary giving your sister your credit card and she gives you that look! Haha! It takes me days to do things that normally takes minutes. The brain fog thing is real... and the ironic thing to me is I really didn’t have that bad of a case in the first place. The second time was April and even the dr was surprised at my positive test result. They tried to rule it out to no avail. I never lost taste or smell either time and never a fever to speak of. And yet months later I’m getting worse fast. Sunday I walked the dog to the mailbox and back. Barely made it and went back to bed knowing something wasn’t right. Luckily someone came checking on me at the request of someone else. I was upstairs, phone downstairs, I couldn’t even get up... he came in and helped me downstairs. My sister later came and got me situated in the bedroom down here. For any active person at all this is a hard way to live. Just glad I can sit outside and see the lake and stuff. When your able and can do things you forget to do that a lot. Haha!
 
yellowcanoe
distinguished member(4989)distinguished memberdistinguished memberdistinguished memberdistinguished memberpower member
 
09/07/2021 12:19PM  
oh Ben how disheartening.. Hoping things finally go better for you!
 
09/07/2021 06:04PM  
yellowcanoe: "oh Ben how disheartening.. Hoping things finally go better for you!"



Thanks, just gotta roll with life. Just shared my thing so if anyone is still putting off getting vaccinated maybe should rethink. Conversations with infectious disease doctors and others had me convinced but was never healthy enough and now on a road I’m not sure where it’ll go. I’m not upset or thinking I’d do anything differently. I think we’re fighting an awful bug. And I am just happy I’m alive... I think. Haha.
Got a good dog that won’t leave my side. What more can a guy want!
 
andym
distinguished member(5166)distinguished memberdistinguished memberdistinguished memberdistinguished memberpower member
 
09/08/2021 04:58AM  
Ben, I’m so sorry you are struggling these days. There are so many scary and unknown bits about this disease. I’m glad you have people to help you. You so deserve that, with everything you’ve always done for everyone else. I hope things get better with time. Until then enjoy sharing that view with your good dog.

I like to share a quote one of my nieces did a calligraphy and painting of when I was having a hard time.

“Rest is not idleness, and to lie sometimes on the grass under trees on a summer's day, listening to the murmur of the water, or watching the clouds float across the sky, is by no means a waste of time.” John Lubbock


Andy
 
09/08/2021 06:27AM  
Sorry to hear that, Ben. You're way overdue for a sunny day. Take care of yourself.
 
09/08/2021 07:07AM  
I think if anyone needs a sunny day it’s Mocha... She spent a big part of her life helping people experience the boundary waters canoe area. She worked hard all her life and left to help her mother in her final years. And only in dealing with this condition can you really have a handle on what she is dealing with. In my opinion she has helped more people in the canoe world with little recognition. Then now to be dealing with this. Hang in there Sheryl!!! You’ll get through this!
I never paid attention to this whole covid threads stuff. Andy, that is a great quote. Steve... I’m determined to be part of your meetup. See you Sunday night!
 
09/08/2021 10:06AM  
Ugh, I'm so sorry to hear of your troubles Ben & Sheryl. I hope both of you are able to recover with no residual effects.
 
09/08/2021 10:27AM  
You two get better, we care and you both add so much to this forum. By far more important is your health.
 
09/08/2021 11:51AM  
Yes, Sheryl needs a sunny day too! Taking care of elderly parents is stressful, time-consuming. I hope you both get one soon ;). Hope you can make it, Ben.
 
Northwoodsman
distinguished member(1678)distinguished memberdistinguished memberdistinguished memberdistinguished member
 
09/10/2021 11:27AM  
Mocha, I'm so glad that you started this thread, THANK YOU! I have really appreciated reading all the responses and insight. My brain fog is so bad that I just had an EEG and and brain MRI. I need to go back a ways to explain. In March 2020 I had an accident in my wood shop and as a result tore one of my vertebral arteries right out of my brain, I did not know that this happened and never went to the doctor or ER. I was in the hospital and in therapy for 6 weeks because I couldn't stand up or walk because I didn't have any balance due to the section of my brain that died during the stroke. I also had double vision. My memory was remarkably good which had the doctors confused; I was completing puzzles that took the therapists over an hour to complete, in 2-3 minutes. Within 2 months I was back to driving and back to work full time.

Fast forward to mid-December and I am hospitalized with Covid and a Pulmonary Embolism. I got out of the hospital and I noticed that I was very short of breath - Pulmonologist attributes it to the PE and Covid. Today I'm still very short of breath and the PE is long gone. My kidney numbers were way off when I was in the hospital with Covid so I continued to see a kidney doctor and a Hematologist for 6 months and was diagnosed with stage 3 kidney failure (again attributed to Covid). In June the brain fog starts to get worse - I let the dog out to go to the bathroom and forget about him for 4 hours (it was 100°F and he had no shade or water). The next day I go grocery shopping and spent over $200 on dairy, meat, seafood, poultry , etc. at Sam's. 5 hours later my wife asks me when I planned on going to Sam's, I told her that I went that morning, she asks where I put everything! Crap, it's still all in the back seat of the truck (parked in the sun). I had to throw it all away. A week later I'm in Target and I couldn't figure out why I was there even though I was pushing a full cart of groceries around. I got so frustrated I just walked out to the truck and drove home. My neurologist thought that I may have had another stroke but the MRI came back unchanged from the one I had when I had my stroke last year and the EEG came out normal for my age. My neurologists office calls me once a month and gives me a random memory test and in 18 months I have never scored less than 100%. Reading about Covid brain fog makes total sense now. All of my doctors had attributed these issues to my stroke and were confused why I almost fully recovered a year ago but am now going backwards.

Mocha - about arthritis - I'm going to Physical Therapy twice a week now for severe arthritis in my back, I can barely stand or walk in the morning and in the evening. My legs and feet are numb and I drop almost everything that I pick up. I didn't have these issues before Covid. I have been seeing an Orthopedic Spine Surgeon for the last several months and have had several injections and a nerve blocking epidural and so far nothing has helped. This back pain was the first symptom of Covid and the reason that I got tested for it in the first place. I was in very serious condition when I was admitted to the hospital for Covid on Christmas Eve, I had 5 doctors treating me for 7 hours while I was in the ER. I don't know what they gave me but the back pain went away overnight and I felt great while I was in the hospital and for 3 days after I left. Then Bam! it came back and has never left. Because of the kidney issues mentioned earlier (which are now back to normal by the way), I can't take any pain killers. My spine surgeon says that their isn't enough medical evidence yet to attribute this to Covid but he has never seen this degree of arthritis and stenosis come on so quickly.

Thanks for all the insight everyone, I'm going to share some of the links with my neurologist.

 
09/10/2021 12:33PM  
This thread hopefully and will get people to realize Covid is no joke. THis thread I believe it will help others to get the shot.
 
09/10/2021 03:25PM  
Joel, that's scary. I hope you get better soon. Ben and Mocha too.
 
      Print Top Bottom Previous Next
COVID-19 Information and Discussion Sponsor:
Minnesota Resort Sales